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It has taken seven years ...

March 4th, 2018

It has taken seven years ...

If I feel OK on the day ...

Everybody has a story. I've hesitated to tell mine but I think that perhaps I can now look back on it without becoming too emotional.

Where to start? Not at the beginning, that would take too long and I might never finish. So, I'll begin seven years ago, Melbourne Cup Day 2008, when I fainted in the kitchen of the home we'd just moved into a few weeks previously.

52 days later, early on Christmas Eve morning, I answered the in-house telephone beside my hospital bed to hear that a suitable donor liver was available and would I accept it. I was one of the lucky ones; I only had to wait a few weeks. The average waiting time is three years.

I don't remember much about the time between my collapse and the liver transplant operation. I was admitted to Ballarat Hospital where I underwent numerous tests and was informed that the problem was diagnosed as Cryptogenic liver failure, which basically means liver failure from unknown causes. At that stage I had no idea how serious my condition actually was so, even though I felt very ill, when I was discharged from hospital after three weeks, I assumed that I was responding to treatment and medication. Five days later, I collapsed again.

When I became conscious I was in a Melbourne hospital, 150 kilometres from my country home. I could not remember my name or even what year it was. I was shocked when my husband told me that I was in the liver ward awaiting a transplant. I didn't think I was that sick!

I'd had a nasty flu a few weeks before my collapse. We were moving house at the time, and so I assumed that my exhaustion and nausea was the result of the flu and the extra stress of moving. That is, until my urine turned dark orange. My GP took a litmus test of my urine sample and told me that I was just a little bit dehydrated and to drink more water. At that stage I was drinking about two litres of water a day - I didn't think it was possible to fit any more in and said so. A week later, when I became dizzy and disoriented while driving to the local shops, I knew I was in real trouble but was unable to get an appointment with my GP for another week.

I looked up my symptoms on the internet and top of the list was Cirrhosis of the Liver, which I immediately rejected. Liver disease happened to other people, not to me - and only alcoholics got cirrhosis, didn't they? Several days after regaining consciousness following my second collapse, I was able to get up and go to the bathroom. I was absolutely shocked to the core of my being to realise that the grossly obese woman I saw in the mirror with eyes the colour of egg yolks was, in fact, me! The day before I collapsed the second time I had weighed myself and I was 67 kilos. Now, two weeks later, I weighed in at 98 kilos and it was all fluid. However, it was not until the day before I underwent the transplant operation that I fully accepted just how sick I was, even though I had been told several times by specialist staff at the hospital that my liver had totally collapsed and it was one of the worst cases they had seen. I guess you could say I was in denial ...

The morning of the operation passed quickly, with medical professionals coming by every few minutes to explain different facets of the operation. They were all very reassuring and I had no doubt that I was in the best hands. I didn’t have time to be afraid, and I guess I was pretty well drugged up anyway. Everything seemed very clear, I knew exactly what was happening but it was like a dream, not quite real.

It was a six and a half hour operation, plus four hours’ preparation, so altogether 10 and a half-hours. My rib-cage was cut open down the centre, and then across in a dog-leg and folded back to insert the new liver. There were no stitches, instead, I had 36 small steel staples, which were much easier to remove when the time came.

Despite dozens of tests over the three week waiting period, the team at the Austin could not find any reason for my liver failure. When they removed my dead liver, it was the size and consistency of a golf-ball and they couldn’t even do a biopsy on it. My surgeon told my husband that I would not have lived another 48 hours without the transplant. It seems that it was all meant to be. I am so sad that somebody had to die before I could receive the transplant and I am still coming to terms with that, but I am so grateful to have this second chance.

I don’t remember Christmas Day, but apparently I woke up and recognised Tom. It wasn’t until the next day that I really became aware of my surroundings in the recovery room. For a few days I was struggling with reality, whatever drugs they had me on made for some interesting hallucinations, but at least I wasn’t feeling any pain.

I spent a week in isolation to minimise the risk of exposure to infection or viruses. My weight was not coming down, and the risk of thrombosis was a problem. My legs were so big that the largest support stockings were too tight for me. Finally, I was put on fluid tablets and at last the weight started to shift. I was losing three to five kilos a day, and by the time I was discharged to go home I was down to 76 kilos.

It was very strange to be home again. Everything looked familiar, but felt as if it belonged to somebody else. Of course we had only been in the house for six weeks before I collapsed, so I hadn’t even had time to settle in. I felt very wobbly after the drive, but I was home again after two and a half months, and that was all that mattered.

Over the next couple of weeks, my weight kept dropping. It leveled out at 47 kilos. I'd lost 55 kilos in the space of just under three weeks, and now we realised that I was completely malnourished. My stomach was bloated, I had no breasts at all, and my arms and legs were pathetically thin. Plus, after having multiple vials of blood taken every day over a two month period, I had collapsed veins, multiple bruises and track marks up both arms. I looked like a junkie!

Six months after the operation, my veins were slowly recovering, and I was assured that they would come good given time. I slowly regained the weight I'd lost, was eating lots of protein and organic whole foods, and began exercising regularly, walking our dog every evening and also building my strength with simple yoga exercises. I knew that there would be ups and downs along the way, but I felt very positive about the future and was looking forward to whatever came along.

My specialists came to the conclusion that my own immune system had decided my liver was a threat and proceeded to attack it - an auto-immune disease, in other words, most probably brought on by the virus I was suffering from at the time. They called it Ideopathic Fulminant Hepatic Failure.

I was discharged on an industrial-sized dose of immuno-suppressant medication, which gradually reduced over time, but which I must take for the rest of my life to stop my body rejecting the transplant. This means that I have no immunity from bugs and infections so have to be very careful, that I don't catch a virus because of the very real fact that it could kill me.

Restaurants, concerts and supermarkets, especially in Winter are not an option for me, and I quake when I have to sit in a crowded waiting room. The medication also makes me very tired, so that talking with more than one person at a time exhausts me within a very few minutes, and it affects my concentration so that I can only drive for 20 minutes or so without taking a break. I also suffer sensory overload when the smallest noise or bright lights can set my nerves screaming.

I never plan ahead, invitations are rarely accepted and I only go out if I feel OK on the day, but I have learned to live with all that and my Art has been a huge contributor to my well-being.

I was always a keen photographer and, as therapy, I began to teach myself Photoshop. It's been an incredible help to my healing. Seven years later, there are still days when I have no energy for anything, down days when I'm feeling very low; I sit at the computer and lose myself in my art. There is nothing like it for lifting my spirits.

If you've got this far, thank you for reading. There is so much more to tell, but the rest must wait for another day ...


P.S. Your comments and questions are welcome, I will read and answer each and every one

Great Romantics and various other surprises ...

March 4th, 2018

Great Romantics and various other surprises ...

Recently, I've been downloading some free for commercial use images from Pixabay to use in my Photographic Art, and as I believe in paying forward as well as back, I have also posted a few of my own photographs for others to use.

Today, as a matter of curiosity, I searched Google images as I do periodically to see who is using my images and for what they are being used.

One of my images, originally titled "Autumn on Wombat Hill", and retitled "Autumn" for Pixabay (my camera data tells me) was originally taken with my Canon EOS 450D on 20/04/2010 at 17:22:37 in the Wombat Botanical Gardens in Daylesford, Victoria.

It was a total delight to discover my image on the cover of a classical music album, "Great Romantics" by Greek pianist, Apostolis Palios - Chopin and Schuman being two of my favourite composers! Full marks to the producers of this album for paying the courtesy of crediting me with copyright of the original image on the back cover!
http://www.smusic.gr/store/p75/Great_Romantics.html

I was very happy to see my image used on several gardening blogs and websites, as well as a naturopathic healthcare website, a poetry site, a couple of psychologists, a psychoanalyst and as the Header for a South American site advertising National Parks.

I was a little surprised to see a Japanese site advertising the beauty of the Nara Prefecture in Autumn, especially as my image was taken thousands of miles away in Australia.

Ditto, an Italian site using my image to extol the virtues of the parks and gardens of Florence, even claiming the image as "from the Casine at the Iris Garden".

Never let the truth get in the way of a good advertisement, obviously!

It almost goes without saying that there were at least two shops on Zazzle who are selling my image as posters and claiming it as their own!

But the one that absolutely floored me was Psychic, Cate Communicates, on Google Plus, who used my image (for which she has yet to thank me, by the way!) below the caption, "No duty is more urgent than that of returning thanks". And, what's more, she has claimed it as her own by adding bogus camera information.

My image, "Autumn", has been downloaded from Pixabay 382 times.

Only 10 people have taken the time to click like, and 11 have left stars (most likely the same people).

Not one person has bothered to say thank you, or leave a comment.

I know I shouldn't be surprised, human nature being what it is, perhaps aghast would be a better word!

How it began ...

March 4th, 2018

How it began ...

Many people have asked me about my work, where I began, what motivates me, and how my art has progressed over the years, so I thought I would share this now updated post which I wrote for a feature article in 2012.

I have always loved photography. When I was very young, I borrowed my mother's old Box Brownie camera, being very careful not to waste film which was expensive, so every click of the shutter had to count. Then I won a Kodak Instamatic camera in a drawing competition when I was about 10 years old and I was over the moon, I had my very own camera which I made good use of until I started work and could afford an upgrade to an Agfa 35mm SLR which I bought second-hand from a friend at work.

Just recently I was thrilled to discover that my great-great aunt Ada way back in the 1880s, was photographing and documenting daily life in and around her Melbourne home with the equipment of the day. Her photographs are extraordinary, all the more so because photography was in its infancy then and the equipment was complicated and cumbersome. I am sure she would be amazed at the DSLRs and digital manipulation programs we use today.

I still sometimes use a Canon EOS450D (mainly for close-up shots with the 50-250 telephoto, because I love the DoF) and, for landscapes, I have just upgraded from my old Panasonic Lumix FZ to a new FZ 1000, because I love the wonderful clarity of its Leica lens. It's an easy to carry point and shoot which never lets me down.

I taught myself how to use Photoshop CS3 back in 2007, as therapy after a major illness, firstly by experimenting and then from a textbook by Deke McClelland, and I only recently upgraded to CS6 for processing my images.

My work has progressed in no particular order, but it has always been a joy. I get lost in the moment and hours go by without my noticing. I work intuitively and prefer to mainly use my own textures, although I do occasionally add a stock texture or stock image if appropriate.
Although I now live 200 kilometers inland, beside a long extinct volcano and surrounded by lakes and mountains, I still long for the island beaches of my childhood and many of my images reflect that nostalgia.

But no matter where I happen to be, I am always inspired by my natural surroundings and also to an enormous degree by my my fellow photographers, artists and friends, who have freely shared their knowledge and encouragement over the years.


My work in The Louvre

March 4th, 2018

My work in The Louvre

I am so amazed, thrilled and honored to announce that my work, A different road ... has been chosen to appear as part of a digital exhibition to be held in THE LOUVRE Museum, Paris, to celebrate the 2015 Exposure Awards. If any of my artist friends should be in Paris on 13 July, I would be over the moon if you are able to attend!


A different road is one of my earlier works, and one of my most popular, in fact it was the first one that I was really happy with, taken near my home in Hepburn, Victoria, back in 2010. It shows a red dirt road winding through farmland, with Mount Franklin (of mineral water fame) in the background. I have had a large framed print on the wall in our family room for some years and never grow tired of it.

Thank you, my dear friends, I am so grateful for your support and encouragement which has made this dream possible!